Haemophilia is a rare hereditary disorder affecting blood clotting. It needs quick care for patients. Considering the specialization required for health care and the costs of the medicines, healthcare resources are pretty sparse on theterritory. Accessibility is then a major issue. In Brittany, patients living with a severe form of the disease have been observed in the areas closed to the haemophilia centres in wider proportion than the others. Nevertheless, distance is not the onlycriteria related with the quality of healthcare access. Life experience, ease of movement or severity of the disease can also constraint or facilitate healthcare access. Each patient has its own perception of distance. In case of emergency, patients do not always reach the closest hospital. They prefer to go in a hospital specialized in haemophilia care. Some cases ofresidential mobility have been noticed in Brittany. Otherwise, haemophilia limits the daily and occasional mobility, affecting joins, acts like as an additional constraint in job search or in the pursuit of homeownership. The thesis has openedstudies opportunities at a national scale or extended to others blood clotting disorders. Methodologically, we confirmed the interest in using successively GIS, questionnaires and interviews with patients
Accessibility to health care for haemophiliac patients in Brittany