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Les mains dans les bases de données
National audience -
Evidence-based activism : patients' activism and the governance of health
International audience -
La construction et la diffusion de l'information sur les maladies rares
Ce chapitre propose d'analyser les enjeux politiques et informationnels liés à la problématisation de la "rareté" des maladies, et d'étudier plus particulièrement un... -
Integrating the Human Phenotype Ontology into HeTOP Terminology-Ontology Server.
International audience -
EURO-WABB: an EU rare diseases registry for Wolfram syndrome, Alstrom syndrom...
International audience -
The entanglement of scientific and political claims: towards a new form of pa...
Drawing on fieldwork in four condition areas (rare diseases, childbirth, Attention Deficit Hyperactivity Disorder, and Alzheimer's disease), this article shows that... -
The ERA-EDTA Working Group on inherited kidney disorders.
International audience -
From 'politics of numbers' to 'politics of singularisation': Patients' activi...
International audience
